Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations

European Journal of Cardiovascular Nursing

31 March 2026
Organised by: Logo
ESC Journals

Abstract

Abstract

A rapidly ageing population implies an increasing demand for informal caregivers. Caregiver-reported outcomes (CROs) can provide valuable insights into caregivers’ experiences of their own health, the burden of tasks, and the need for support. This scientific statement provides a comprehensive overview of CROs in populations with cardiovascular diseases (CROsCVD). The existing CROs measure impact of caregiving; caregiver skills and preparedness; caregiver emotional and psychological impact; and caregiver support. The integration of CROs into clinical practice, alongside the development of more specific and culturally adaptive tools, will enhance the recognition of caregivers as key stakeholders in CVD management.

Contributors

Irene Lie
Irene Lie

Author

Oslo University Hospital Rikshospitalet Oslo , Norway

Britt Borregaard
Britt Borregaard

Author

Odense University Hospital Odense , Denmark

Suzanne Fredericks
Suzanne Fredericks

Author

Toronto Metropolitan University Toronto , Canada

Angela Durante
Angela Durante

Author

G. Monasterio CNR-RT Foundation Pisa , Italy

Johannes Grand
Johannes Grand

Author

Hvidovre Hospital Copenhagen , Denmark

Martha Kyriakou
Martha Kyriakou

Author

European University of Cyprus Nicosia , Cyprus

Angela Massouh
Angela Massouh

Author

American University of Beirut AUB Beirut , Lebanon

Lis Neubeck
Lis Neubeck

Author

Edinburgh Napier University Edinburgh , United Kingdom of Great Britain & Northern Ireland

Francois Schiele
Francois Schiele

Author

Regional University Hospital Jean Minjoz Besancon , France

Marco Proietti
Marco Proietti

Author

University of Milan Milan , Italy

Jose Miguel Rivera-Caravaca
Jose Miguel Rivera-Caravaca

Author

University of Murcia Murcia , Spain

David R Thompson
David R Thompson

Author

Queen's University of Belfast Belfast , United Kingdom of Great Britain & Northern Ireland

Philip Moons
Philip Moons

Author

KU Leuven Leuven , Belgium