Cardiomyopathies in children and adolescents: aetiology, management, and outcomes in the European Society of Cardiology EURObservational Research Programme Cardiomyopathy and Myocarditis Registry
European Heart Journal
Abstract
Childhood-onset cardiomyopathies are rare and poorly characterized. This study examined the baseline characteristics and 1-year follow-up of children with cardiomyopathy in the first European Cardiomyopathy Registry.
Prospective data were collected on individuals aged 1–<18 years enrolled in the European Society of Cardiology EURObservational Research Programme Cardiomyopathy and Myocarditis long-term registry (June 2014–December 2016).
A total of 633 individuals aged ≤18 years with hypertrophic [HCM;
The findings confirm the heterogeneous aetiology of childhood cardiomyopathies and show a high frequency of familial disease. Outcomes differed by cardiomyopathy subtype, highlighting a need for disease-specific evaluation and treatment.
Contributors
F W Asselbergs
Author
N De Jonge
Author
J H Kirkels
Author
J Van Der Heijden
Author
L Van Laake
Author
A Sammani
Author
Juan Pablo Kaski
Author
University College London London , United Kingdom of Great Britain & Northern Ireland
J Ajuluchukwu
Author
Gabrielle Norrish
Author
Juan Ramon Gimeno Blanes
Author
A Olusegun-Joseph
Author
Philippe Charron
Author
Perry Elliott
Author
University College London London , United Kingdom of Great Britain & Northern Ireland
Luigi Tavazzi
Author
Michal Tendera
Author
E Ekure
Author
Cécile Laroche
Author
G Brzezinska-Rajszys
Author
L Ziolkowska
Author
Anwar Baban
Author
A Boruc
Author
E Plodzien
Author
Diala Khraiche
Author
E Zaklyazminskaya
Author
S Dzemeshkevich
Author
E Kolbasova
Author
N Kotlukova
Author
V Rusinova
Author
A Cequier
Author
Lidia Ziolkowska
Author
J Salazar-Mendiguchia
Author
J Gonzalez
Author
N Manito
Author
Matthias Gorenflo
Author
P Garcia-Pavia
Author
Aris Anastasakis
Author
A Briceno
Author
M Cobo-Marcos
Author
F Dominguez
Author
J R Gimeno Blanes
Author
F J Castro
Author
C Munoz Esparza
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M Sabater Molina
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M Sorli García
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D Lopez Cuenca
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P L Sanchez Fernandez
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E Villacorta
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B Plata
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R Ferrari
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A Alonso
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C Avila
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J Bax
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L Bravo
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C Blomström-Lundqvist
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S Gielen
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E Diaz-Pelaez
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M Gallego-Delgado
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P Lancellotti
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A P Maggioni
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L Garcia-Cuenllas
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J E Lopez-Haldon
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E M Cantero Perez
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N Maniadakis
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F Pinto
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M L Pena Pena
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F Ruschitzka
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L Tavazzi
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P Vardas
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F Weidinger
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U Zeymer
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A Vahanian
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A Budaj
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N Dagres
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N Danchin
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V Delgado
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J Emberson
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O Friberg
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C P Gale
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G Heyndrickx
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B Iung
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S James
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A P Kappetein
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A P Maggioni
Author
N Maniadakis
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K V Nagy
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G Parati
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A-S Petronio
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M Pietila
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E Prescott
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F Ruschitzka
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F Van de Werf
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F Weidinger
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U Zeymer
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C P Gale
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B Beleslin
Author
A Budaj
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O Chioncel
Author
N Dagres
Author
N Danchin
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J Emberson
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D Erlinge
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M Glikson
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A Gray
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M Kayikcioglu
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A P Maggioni
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K V Nagy
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A Nedoshivin
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A-P Petronio
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J W Roos-Hesselink
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L Wallentin
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U Zeymer
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B A Popescu
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D Adlam
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A L P Caforio
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D Capodanno
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M Dweck
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D Erlinge
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M Glikson
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J Hausleiter
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B Iung
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M Kayikcioglu
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P Ludman
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L Lund
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A P Maggioni
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S Matskeplishvili
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B Meder
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K V Nagy
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A Nedoshivin
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D Neglia
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A A Pasquet
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J W Roos-Hesselink
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F J Rossello
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S M Shaheen
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A Torbica
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A lida Caforio
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Juan Ramon Gimeno Blanes
Author
P hilippe Charron
Author
P erry Elliott
Author
Juan Pablo Kaski
Author
Aldo P Maggioni
Author
Luigi Tavazzi
Author
Michal Tendera
Author
S Komissarova
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N Chakova
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S Niyazova
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S Mostafa
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J Pihkala
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T Ojala
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A Hiippala
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T Jarvinen
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D Bonnet
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D Khraiche
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I Szezepanski
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M Gorenflo
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R Arnold
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S Uhl
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V Ziesenitz
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A Jung
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E Roesch
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M Ilina
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J P Kaski
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G Norrish
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E Field
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A Anastasakis
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K Ritsatos
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V Vlagkouli
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S Rammos
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G Kourelis
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G Vagenakis
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G Papadopoulos
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A Giannakopoulou
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E Karanasios
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P Papachristou
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G Servos
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E Biagini
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A Corsini
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C Gagliardi
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M Graziosi
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A Milandri
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L Ragni
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S Palmieri
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R Calabro
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G Pacileo
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M G Russo
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G Limongelli
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M Caiazza
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A Cirillo
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G Del Giorno
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A Esposito
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S Tramonte
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F Valente
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R Gravino
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T Marrazzo
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D Masarone
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V Pazzanese
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A Rea
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M Rubino
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F Drago
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A Baban
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G Sinagra
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C Carriere
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M Merlo
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F Ramani
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M Bobbo
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B Dagata
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A Kavoliuniene
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A Krivickiene
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E Tamuleviciute-Prasciene
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M Viezelis
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