Placing patient-reported outcomes at the centre of cardiovascular clinical practice: implications for quality of care and management A statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the Association for Acute CardioVascular Care (ACVC), European Association of Percutaneous Cardiovascular Interventions (EAPCI), European Association of Preventive Cardiology (EAPC), Heart Failure Association (HFA), European Heart Rhythm Association (EHRA), European Association of Cardiovascular Imaging (EACVI), ESC Regulatory Affairs Committee, ESC Advocacy Committee, ESC Digital Health Committee, ESC Education Committee, and the ESC Patient Forum

European Heart Journal

22 August 2023
Organised by: Logo
ESC Journals CARDIOVASCULAR NURSING AND ALLIED PROFESSIONS Research Methodology OTHER European Society of Cardiology

Abstract

Abstract

Patient-reported outcomes (PROs) provide important insights into patients’ own perspectives about their health and medical condition, and there is evidence that their use can lead to improvements in the quality of care and to better-informed clinical decisions. Their application in cardiovascular populations has grown over the past decades. This statement describes what PROs are, and it provides an inventory of disease-specific and domain-specific PROs that have been developed for cardiovascular populations. International standards and quality indices have been published, which can guide the selection of PROs for clinical practice and in clinical trials and research; patients as well as experts in psychometrics should be involved in choosing which are most appropriate. Collaborations are needed to define criteria for using PROs to guide regulatory decisions, and the utility of PROs for comparing and monitoring the quality of care and for allocating resources should be evaluated. New sources for recording PROs include wearable digital health devices, medical registries, and electronic health record. Advice is given for the optimal use of PROs in shared clinical decision-making in cardiovascular medicine, and concerning future directions for their wider application.

Contributors

Philip Moons
Philip Moons

Author

KU Leuven Leuven , Belgium

Elena Arbelo
Elena Arbelo

Author

Hospital Clinic, University of Barcelona Barcelona , Spain

Britt Borregaard
Britt Borregaard

Author

Odense University Hospital Odense , Denmark

Barbara Casadei
Barbara Casadei

Author

National Heart and Lung Institute Imperial College London , United Kingdom of Great Britain & Northern Ireland

Bernard Cosyns
Bernard Cosyns

Author

University of Brussels Brussels , Belgium

Alan G Fraser
Alan G Fraser

Author

University Hospital of Wales Cardiff , United Kingdom of Great Britain & Northern Ireland

Paulus Kirchhof
Paulus Kirchhof

Author

University Heart and Vascular Centre Hamburg (UHZ) Hamburg , Germany

Richard Mindham
Richard Mindham

Author

ESC Patient Forum Sophia Antipolis, France , United Kingdom of Great Britain & Northern Ireland

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