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Ms Pisana Maria Ferrari

AIPI, Associazione Ipertensione Polmonare Italiana OdV, Bologna (Italy)

Political Science and International Relations graduate, Université Libre de Bruxelles, Belgium. Professional career in past 34 years in communications and event management. Since 2017 Branding and Digital Marketing manager at cApStAn Linguistic Quality Control SA, Belgium. Former pulmonary hypertension patient and double lung transplant recipient. Patient advocate for pulmonary hypertension and organ donation and transplant since 2003. In this capacity has collaborated with different scientific societies (ESC, ERS, ESOT, WSPH), patient advocacy groups (AIPI, Italian Pulmonary Hypertension Association, PHA Europe), NGOs (EURORDIS), EU institutions/agencies (Commission, EP, EMA), industry. Author/co-author of several articles/hands-on guides on patient QOL, patient engagement/self-management, lung transplant. Italian mother tongue, English Cambridge C2, A grade level, French native language level. Digital skills: Microsoft Office, Wordpress, Social Media, Google analytics, MailChimp.

What's new in the diagnosis and treatment of pulmonary hypertension, Part 2. Understanding specific aspects of congenital heart disease, chronic thromboembolic PH, and the patient's voice

20 December 2022, from 18:00 to 19:00
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