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Ms Pisana Maria Ferrari

ESC Patient Form, Brussels (Belgium)

Political Science and International Relations graduate, Université Libre de Bruxelles, Belgium. Professional career in past 34 years in communications and event management. Since 2017 Branding and Digital Marketing manager at cApStAn Linguistic Quality Control SA, Belgium. Former pulmonary hypertension patient and double lung transplant recipient. Patient advocate for pulmonary hypertension and organ donation and transplant since 2003. In this capacity has collaborated with different scientific societies (ESC, ERS, ESOT, WSPH), patient advocacy groups (AIPI, Italian Pulmonary Hypertension Association, PHA Europe), NGOs (EURORDIS), EU institutions/agencies (Commission, EP, EMA), industry. Author/co-author of several articles/hands-on guides on patient QOL, patient engagement/self-management, lung transplant. Italian mother tongue, English Cambridge C2, A grade level, French native language level. Digital skills: Microsoft Office, Wordpress, Social Media, Google analytics, MailChimp.

Inclusion of the patient perspective in new trials in pulmonary hypertension

Event: ESC Congress 2024

Topic: Treatment

Session: Shaping the future management of pulmonary hypertension

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