Mrs Francoise Steinbach

A volunteer in the French Marfan patient organisation, a patient partner within the European reference network for rare multi systemic vascular diseases and a member of the ESC patient forum - Treasurer of the Marfan Europe Network Francoise has experience in living with cardiovascular problems for more than 30 years after an aortic dissection type A, atrial fibrillation, atrial flutters, a sudden cardiac arrest following ventricular fibrillation, 2 open heart surgeries (Bentall and redux of Bentall) plus a mitral valve replacement on a Marfanoid mitral apparatus, an annuloplasty on the tricuspid valve plus a patch between the left ventricule and the right atrium - She has experience in self measurement and self management of the VKA treatment due to 2 mechanical valves and she has an ICD set with the pacemaker function following atrioventricular block. She has permanent atrial fibrillation and ventricular extrasystoles. Aging (63) induces a heart insufficiency reduced EF.